| 07:00 – 08:00 | Registration / Exhibition tour | |
|---|---|---|
| Msk Management: Raising The Bar In Hemnet For Improved Qol | Moderators: Magdy El-Ekiaby (Egypt) Ahmad Tarawah (KSA) | |
| Target Joints: Prevention and Treatment [Case Studies from the Region. How can we make synovectomy more accessible? | ||
| 08:00 – 08:10 | Questions about Management of Early, Moderate and Advanced Target Joints: Case Presentations | Magdy ElEkiaby (Egypt) Ahmad Tarawah (KSA) |
| 08:10 – 08:35 | Panel Discussion | |
| Hematologist’s Perspective | Abdulkareem AlMoamen (KSA) |
|
| Orthopedics Surgeon’s Perspective | Musa Al-Hawsawi (KSA) | |
| Physiotherapist’s Perspective | Cesar Haddad (Lebanon) | |
| Patient’s Perspective | Mohammed Abu Hagar (Egypt) Rashed AlGamdi (KSA) |
|
| 08:30 – 08:40 | Discussion | |
| 08:40 – 08:50 | Abstract: Circumcision in hemophilia Moroccan Protocol | N.El Ansari (Morocco) |
| Access To Care And Treatment In The Hemnet Countries | Moderators: Abeer Abdulmonem (Oman) Mahasen AlSaleh (KSA) |
|
| Key Challenges in Access to Care | ||
| 08:45 – 08:55 | Challenges in GCC Countries | Hadeel Mohammad (Kuwait) |
| 08:55 – 09:05 | Access to Care in Algeria: Successes and Challenges | Meriem Bensadok (Algeria) |
| 09:05 – 09:15 | Access to Care in Libya | Afaf Abu-Shaalah (Libya) |
| Equitable Access to Treatment, Patient Outcomes and Policy Implications: | ||
| 09:15 – 09:25 | Experience from Tunisia | Ons Ghali (Tunisia) |
| 09:25 – 09:35 | Experience from Iraq | Nidal Al-Rahal (Iraq) |
| 09:35– 09:45 | Discussion | |
| Keynote Lecture | ||
| 09:45 – 10:15 | Indicators of Care in Hemophilia | Emna Gouider (Tunisia) |
| Break / Exhibition tour | ||
| Keynote Lecture | ||
| 10:30 – 11:00 | Rare bleeding disorders: What is new In management? | Tarek Owaidah (KSA) |
| Advancements In Hemophilia Care: Impact For Hemnet Countries | Moderators: Nawal Al-Tayeb (Sudan) Badryah Algamdi (KSA) | |
| 11:00 – 11:20 | New Treatment Options | muhammad faisal khanani (UAE) |
| 11:20 – 11:30 | Experience from Egypt: Roll-out of Non-Replacement Therapies | Mona Hamdy (Egypt) |
| 11:30 – 11:40 | Experience from Pakistan | Tahira Zafar (Pakistan) |
| 11:40 – 11:50 | Experience from Saudi Arabia | Ohoud Kashari (KSA) |
| 11:50 – 12:00 | Discussion | |
| Lunch / Prayer Break / Exhibition tour | ||
| 13:00 – 13:45 | Novo Nordisk Symposium Advancing Care in Haemophilia A: The Power of Extended Half-Life Therapies Speaker: Ohoud Kashari (KSA) |  |
| Opening Ceremony PRIZEs | ||
| Break / Exhibition tour | ||
| How Can Hemnet Overcome Barriers To Home Therapy? | Moderators: Nakkal Salim (Algeria) Abdulkareem Almoamen (KSA) |
|
| 15:45 – 16:00 | Steps to Introduce Home Care in Lebanon | Claudia Khayat (Lebanon) |
| 16:00 – 16:15 | Morocco’s Strategy for Introducing Home Therapy | Mohamed El khorassani (Morocco) |
| 16:15 – 16:30 | Saudi Arabia Experiences in Home Therapy: Madinah and Riyadh are examples | Eman Dahlan (KSA) Maha Almowllad (KSA) Mahmoud Abu-Riash (KSA) |
| 16:30 – 16:45 | Introduction Of Home Therapy In Pakistan | Tahira Zafar (Pakistan) |
| 16:45 – 17:00 | Discussion | |
| 17:00 – 17:45 | BMS SYMPOSIUM Luspatercept: Real-life Experience in Beta-thalassemia patients Chairperson: Dr. Sultan Almutairi Speaker: Prof. Salwa Haindawi |  |
| 07:00 – 08:00 | Registration / Exhibition tour | |
|---|---|---|
| Keynote Lecture | ||
| 08:00 – 08:30 | Burden of HMB on women of IBD | Rezan Abdul Kadir (UK) |
| Women And Girls With Bleeding Disorders | Moderators: : Claudia Khayat (Lebanon) Nadia Alhazmi (KSA) |
|
| 08:30 – 08:45 | Management of pregnancy in women with bleeding disorders | Nadia Alhazmi (KSA) |
| 08:45 – 09:00 | Management of HMB in women with bleeding disorders, | Rezan Abdul Kadir (UK) |
| 09:00 – 09:15 | Management of Fertility in Women with Bleeding Disorders in Palestine | Mahdi Hirzallah (Palestine) |
| 09:15 – 09:30 | Case Scenario | Raghad Tarawah (KSA) |
| 09:30 – 10:00 | Panel discussion Rezan Abdul Kadir (UK) Nadia Alhazmi (KSA) Galila Zaher (KSA) Claudia Khayat (Lebanon) | |
| Keynote Lecture | ||
| 10:00 – 10:30 | How Treatment on Hemophilia Have Been Evolved | Flora Peyvandi (Italy) |
| Break / Exhibition tour | ||
| Gene Therapy | Chairperson: Abdalla Al Abbadi (Jordan) Tarek Owaidah (KSA) |
|
| 10:45 – 11:05 | Gene Therapy Update | Flora Peyvandi (Italy) |
| 11:05 – 11:10 | Discussion | |
| 11:10 – 11:20 | Gene Therapy Clinical Trials in HEMNET Countries | HEMNET Countries |
| 11:20 – 12:00 | Bpl Symposium Factor X Deficiency Chairperson: Flora Peyvandi (Italy) Speaker: Ahmad Tarawah (KSA) |  |
| Lunch / Prayer Break / Exhibition tour | ||
| 13:00 – 13:45 | Roche Symposium Updates in the management of hemophilia A patients without inhibitors Chairperson: Ohoud Kashari (KSA) Speaker: Johnny Mahlangu (South Africa) |  |
| Keynote Lecture | ||
| 13:45 – 14:15 | VWD Management | Magdy ElEkiaby (Egypt) |
| Von Willebrand Disease | Chairperson: Mustapha Al-Falah (Jordan) Sami Batat (KSA) |
|
| Outreach, Diagnosis, and Treatment of VWD Care in HEMNET | ||
| 14:15 – 14:30 | Experience From Syria | Tahani Ali (Syria) |
| 14:30– 14:45 | Experience From Egypt | Sonia Adolf (Egypt) |
| Best Abstracts | Moderators: Galila Moktar (Egypt) Afaf Abu-Shaalah (Libya) |
|
| 14:45 – 14:55 | Heavy Menstrual Bleeding Among Glanzmann Thrombasthenia Ladies, Single-Center Experience | Ahmad Tarawah (KSA) |
| 14:55 – 15:05 | Observational, PRO Study To Evaluate Quality Of Life For Hemophilia Patients On Hemlibra, Single Study | Ohoud Kashari (KSA) |
| 15:05 – 15:15 | Multiplex-PCR is a useful and economical method to detect large exon deletions in severe hemophilia A in developing countries: Experience of Tunisia | Hejer Elmahmoudi (Tunisia) |
| 15:15 – 15:25 | Evaluation of safety and efficacy of Emicizumab prophylaxis in Egyptian pediatric patients with Hemophilia A: Single center experience | Marwa Zakaria (Egypt) |
| 15:25 – 15:35 | Changes in the Fibrinolytic System of Patients Infected with Severe Acute Respiratory Syndrome Coronavirus 2 | Esraa Abudouleh (KSA) |
| Break / Exhibition tour | ||
| Digital Platforms And Applications For Bleeding Disorders | Moderators: Tamer Hassan (Egypt) Mohammad Alshahrani (KSA) | |
| 16:00 – 16:15 | The WFH World Bleeding Disorders Registry (WBDR) | Emna Gouider (Tunisia) |
| 16:15 – 16:30 | Digitalizing Hemophilia Care | Galila Zaher (KSA) |
| 16:30 – 16:40 | Abstract: myWBDR Application Users’ Satisfaction | I Thabet (Tunisia) |
| 16:40 – 16:50 | Establishment of bleeding disorders registry in Morrocco | Fatima Zahra Benfouila (Morrocco) |
| Fundraising | Moderators: Emna Gouider (Tunisia) Rana Saify (Canada) |
|
| 16:50 – 17:00 | Experience from Saudi Arabia | Ahmad Tarawah (KSA) |
| 17:00 – 17:10 | Experience from Egypt | Magdy ElEkiaby (Egypt)) |
| 17:10 – 17:20 | WFH Humanitarian Aid Program | Assad Haffar (Canada) |
| 17:20 – 17:30 | Group discussion | |
| Best Abstracts | Moderators:Laila Elshereif (Egypt) Thahani Bin Ali (KSA) |
|
| 17:30 – 17:40 | Epidemiological characteristics of congenital bleeding disorders in south Tunisia | Maha Charfi (Tunisia) |
| 17:40 – 17:50 | Epidemiologic study of hereditary bleeding disorders in Dubai ,UAE :A single center experience | Yasmine Elsherif (UAE) |
| 17:50 – 18:00 | Von Willebrand Disease laboratory diagnosis in a low middle income country | Ons Ghali (Tunisia) |
| Closing Remarks |
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